Main

2024

In Ukraine, a book about the first contact with epilepsy has been released. What is it and how to get it?

On March 26th, the world observes "Purple Day" - a day of epilepsy awareness. Ukraine is not left out of educational eve

Doctors

Parents

Patients

2024

The project "Protection and Safety of Women and Girls with Disabilities for Integration into Local Communities"

A detailed report on the project

2023

Training seminar on the "Accessible Medicines" program

The National Health Service of the NGO "UKRAINIAN LEAGUE AGAINST EPILEPSY" and the NGO "Epi Prosvita" invite doctors

Doctors

In this section, you will find translations of interesting research studies and discoveries related to medicine

Parents

Inspirational and informative materials for parents raising children with disabilities

Patients

You have rights, and we will show you how to use them. If you have problems, write to us, and we will help

Last news

Story of the unwavering strength of a mother raising a child with a disability

About how the Terekhova`s family copes with their son's illness and helps others

What can a child with a disability receive in Ukraine?

What should caregivers of people with disabilities know to fully access state benefits?

Media campaign on the needs of people with disabilities

Why people with disabilities need more support during wartime.

What is ERNcare4Ua?

ERNcare4Ua: new platform to help rare disease patients

What is Orphanet?

Orphanet is an organisation and knowledge base dedicated to rare diseases

Useful Links for Patients with Rare Diseases

Useful Organizations and NGOs for Ukrainians with Rare Diseases

You can help Epiprosvita

The NGO 'Epiprosvita' takes care of 10,000 people with epilepsy and their families. By donating to us, you will pay for medications, diapers, and educational materials for people with this severe illness.

Donate

We are

The NGO 'Epiprosvita' was founded in 2021 by Niia Nikel. Nia's daughter, Yeva, has Jamuar syndrome, a condition that affects only 35 people in the world and manifests as epilepsy and cerebral palsy. Faced with a crisis in the healthcare system, a lack of medications, and a scarcity of modern information in the Ukrainian language, she decided to engage in activist activities aimed at defending the rights of people with disabilities, improving the healthcare system, and enhancing the quality of life for individuals with disabilities.

Partners

The NGO "Epiprosvita" is part of the largest patient organization - "Patients of Ukraine," collaborates with the UKRAINIAN LEAGUE AGAINST EPILEPSY, is a member of the FFR network, has memorandums of cooperation with Khmelnytskyi Region, Free Legal Aid, and has projects with dozens of public and state organizations, both within Ukraine and abroad.

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