ERNcare4Ua: new platform to help rare disease patients and their families fleeing from Ukraine
The European Reference Networks (ERNs) have set up a support platform – ERNcare4Ua – to help rare disease patients and their families caught up by the ongoing Russian war against Ukraine. The platform provides information on the 24 networks dedicated to rare and low prevalence diseases funded by the European Commission. ERNs are specialised in the diagnosis and treatment of rare/ very rare illnesses in almost all fields of medecine, including rare cancer.
The ERN’s 1,600 expert centres are embedded in more than 300 EU hospitals, generally distributed in most or all EU countries (including neighbouring Ukraine) and Norway. The platform says the networks are committed to provide a hub for rare diseases patients inside or outside Ukraine.
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